Tag Archives: Sarcoidosis

Back to the beginning

For the first time since I actually started being ill back in June 2010, I feel worse, absolutely dreadful. The doctors have issued me with a one month sick note, jeez I don’t want to go through all that again. For sure Atos got my assessment wrong in February 2011, as did all the appeals almost taking me to the parliamentary ombudsman, but I stopped as it was also bothering my health. Trying not to think too much. What is a sarcoid? this site tells everything about life before sarcoidosis, during, and obviously it seems to stay there.

Nearly threw in the towel

The title say’s it all, last evening and then night I almost thought about, but today has been positive, especially through Remploy and work. The main thing is; I now fully understand I can not carry out jobs like I used to, the mind say’s yes but the body is reality. Work and Mark at Remloy have been brilliant and understanding. Here’s to the upcoming winter without Pred, working and being a one in ten sarcoid – give it to me!

Ankle dots

Most of us sarcoids know we can have skin problems, especially the red ankle blemishes that can reach pretty near to the knees. Just lately I have got dots appearing on my ankles, these dots are just where the acupuncture needles were stabbed into my tendinitis ankles, they tried but it just didn’t work.

I have gone off the subject a little, its very unusual for me to go on tangents but it can happen, in fact if you can talk in tangents it is possibly to hold many in flesh person conversations at the same time, not online as that’s easy, sometimes I think that talking in tangents is just a phenomena that folks are trying to use just to make them appear confusing, therefore attractive to other souls who might need away out of being confused, you know the type…

Acupuncture on my tendinitis ankles

So, we finally came to a decision, the tendinitis of my ankles is more than likely caused by the sarcoidosis, and as I have been on upto 40mg of Prednisolone per day for approaching two years its time to try get off it, well, reduce it and see what happens?


OK the quality is not brilliant from my mobile, I do have a decent camera but keep forgetting! We know that reducing the Pred will cause some problems to raise an ugly head that it has been masking, so lets see how the needles help with my sarcoid ankles.


What I will say here, that above needle on the left I certainly felt, but not in the pain as you might expect, it were a very strange yet relaxing sensation that also mildly went up my leg!

I could find it very easy to drift away while having those little needles shoved in me, hmmm, yes I certainly enjoyed them, oh, its mental pain I don’t like, so lets see what happens over the next few weeks.

Can sarcoidosis cause blindness

Yes blindness can be temporally and/or permanent and usually through Bilateral Uveitis. What are sarcoidosis eye symptoms though? its a question that seems to be brought up quite a bit, here is information on eye problems brought on by sarcoid including blindness. Hoping this straight forward explanation helps those who certainly – like me – do not like too much technical terms within many organisations explanations!

This is the link; What is Bilateral Uveitis?

Can sarcoidosis cause these problems

With so many questions being researched and asking “what can sarcoid cause,” I decided to write and explain in easy detail as many answers as possible for you to view, please do continue reading can sarcoidosis cause these problems

Sarcoid

What is a sarcoid? my very own song about living with sarcoidosis, it must be the only one on the planet, have a look and spread the news about sarcoid, enjoy the video – great sounds at the end of what is a sarcoid being cut down!

X-Ray time.

I had my X-ray yesterday, had some kind of cough for the last few months?

Merry Christmas to all.

But I have the flu, feel well ill. Hope I have some kind of recovery for new years eve gig, really looking forward to it. Phoned emergency docs to find out what I should do to recover abit quicker, spoke with 2 (Sue and Elaine) its viral so resting is the  main thing.