Tag Archives: Sarcoidosis

Yes that is incredibly tough to work out but here I try and in order! phew…

1980 – Left school at 15, too young for the dole.
1980 – Bradford Hauliers, vehicle mechanical yts shit.
1980 – Stephensons, metal wire operative yts shit.
1981 – J Clark engineering, machine operative, not shit, some nice folks.
1981 – Wileys cycles & toys, mechanic/sales person, loved it, brilliant owner.
1983 – RAF, painter & finisher (panel beater etc.), great friends. PVR’d.
1985 – Dole.
1985 – (Name?) Roller shutter installation, labourer. Shit.
1985 – Jade cycles, mechanic & sales, good-stole loads of cash & components.
1986 – Dole.
1986 – Maxicuts shop, general mug.
1986 – Cardinal shop fitters, shop-floor operative shit but met a good guy.
1987 – Hallfield garage, panel beater/sprayer, set of cunts.
1987 – Dole.
1987 – Metalbox engineering, stores/labourer, loved it, left because-ask…
1989 – Denso/marston radiators, machine operator, totally shit.
1990 – George Barker, refrigeration assembler, nice job, too many cunts.
1994 – Schwitzer Europe Ltd, machine operator, superb job then bad shifts.
1998 – AETC Ltd, setter/operator, super job, then supervisor/improvements.
2000 – Hurel-Dubois, cell manager, absolutely loved it, best job ever.

It’s a total shame, my personal life changed to being totally fucked up. Thinking I could have been very good there but life eh. Met a best friend ever though.

2002 – Reiter automotive, shift manager, enjoyed but I was fucked.
2003 – Dole.
2003 – Plumber, thankfully a couple of very good friends took me on.
2003 – Started performing with bands, many gigs.
2004 – Plumber/joiner/electrics/carpet fitter. Thank fuck for them.
2006 – Reached fourth year of plumbing (gas) but construction crashed.
2006 – Many gigs, with backing tracks solo, kept with bands. Solo was shit.
2007 – Hindle gears, machine setter/operator, it was OK.
2007 – Can’t remember company name? Machine setter/operator, shit.
2008 – Birkby’s plastics, Improvements engineer, they wouldn’t listen.
2008 – AETC Ltd, machine setter/operator, loved it, started feeling ill.
2009 – Metalbox engineering, progress chasing, very good but bad mind.
2009 – 600 Lathes, Shift manager/improvements, OK but even worse mind.
2009 – Dole.

New direction as I thought it was the previous jobs starting to make me ill.

2009 – Tong school, art & craft technician, loved it but still felt ill.
2009 – Allied healthcare, support worker, great job shit company.
2009 – Airedale hospital, support worker/lean team, absolutely loved it.
2010 – ill, mainly sarcoidosis but the mind also fucked up big time.

So I thought I had finally found a dream job in healthcare through the NHS at Airedale hospital. Worked with older folks and mentally ill folks. I loved it, the improvement side was secondary. My manufacturing background was perfect for them, as was my ‘firm’ stance! Anyway, job went.

2012 – Job through Leeds Remploy, administration/telephone work.

2013 – Body fucked up big time.

2014 – Done.

Another thought, does having so many jobs look stable?

Wrote while all the shit was going on, only after all these years does this really make sense…

So, our latest hospital appointment. It seems the bones are showing thinning and wear and tear leading to Osteoporosis. Ok, we are aware that this would happen due to the prescribed medication to try and manage the Sarcoidosis.

The weekly Alendronic acid and then the monthly Ibandronic acid just gave too much in side affects so it had to stop. Next step is to do a yearly infusion, this too has many side affects, especially us with Sarcoidosis. This infusion can actually cause the bones to go brittle and something called ‘jawbone death’ can happen phew. Our teeth are falling out, brushing shows little blood. We are far from perfect when it comes to teeth but it is mainly down to the medication, lack of vitamin D and Calcium and that bastard called Sarcoidosis.

Hmmm, ok we get that, but vitamin D and Calcium supplements can be harmful for those of us who live with Sarcoidosis – are you keeping track?

We are confused…

Me, myself and I…

Are fed up…

So, it seems my MP might have helped sort something out with the benefits. The welfare finally accepted everything, but the hassle getting there was dreadful. My MP – Tory, I know I know, but they have been very good. I’m hoping this blip is sorted and then I should be covered through 2019. Next, at 45 years old I never expected my body to pack in, tried working through Remploy, body packs in, yet I still feel embarrassment to receive benefit help.