Christmas can be difficult for people who aren’t lucky enough to have a harmonious, traditional family set-up. Recognising that lots of people are alone at Christmas and looking out for them is the most charitable thing you can do at this time of year. Which answers a lot of my thoughts and festive problems. I haven’t had a tree, or celebrated Christmas for a very long time…
On Tuesday, that conversation I mentioned I had yesterday. I was simply stating that (in my opinion) charity should start at home. Aid to nuclear countries should stop, aid to rogue countries should be ‘properly’ investigated. I have experience of needing charity help when the welfare decided not to help me. I did understand what that ‘geezer’ was saying – there is enough wealth in the world to sort hunger etc. but come on, that will never happen?
In the United Kingdom what should happen is to stop hunger, homelessness, bedroom tax, discrimination… more help and equal rights for the none resident or ‘absent’ parent (most are not absent, the system makes them absent, just as the resident parent – usually ‘mother’ can), you get my drift. For me that is where charity starts, at home.
This geezer told me I have pretty much been taken for some kind of ride, by the Tories (I forget his exact phrasing), me, fucking hell! He said my ears would burn in an open meeting! Amongst other things he was indirectly insulting my experience. I believe his ears would bleed, in an open meeting from those who are supported by the like’s of Ssafa, The Royal British Legion and shelter. especially ex forces folks.
Hence I had to be direct in calling him a tosser and then – deservedly, a Wanker. He is the only person to have blocked me on social media.
I did call him something else, but now calm he is simply a twat!
My friend here understands me better!
Well, I do enjoy my doctor, we have a laugh. It seem’s he is possibly going to try and get other medics involved, even private one’s? For nine out of 10 sarcoids this systematic, frustrating, debilitating – and super important, depressing disease, well, for nine out of 10 it is self limiting and will leave on it’s own without any medication. For the rest of us – one in 10, about one in 100,000 folks (in the UK), this slowly get’s worse.
Research will not be at the top of any government and pharmaceutical company’s list as the return’s would not be worth it. So they carry on playing with us. One thing, so many tell us to keep our chin up, stay positive, be optimistic, etc. etc. Since June 2010 I have tried, it’s fucking difficult.
Slowly, but surely, it sticks nails into us…
How time does fly, you flew through your teens. You are ace.
So, after four years of being very lucky to get where I live, due to being ill – Sarcoidosis. It becomes a lot clearer why various areas within this flat appeared to be simply painted over. Numerous times I have contacted Home Group (my housing association) and still nothing. I have now sent the following photos to them, also the links to the videos. Yes some folks are obviously saying I am making a mistake, but if the housing association – Home Group, wont or indeed can’t fix this leak then I must try move on ASAP…
In October 2013 the Sarcoid started to attack me quite a lot, it then never left me. A few weeks ago it more than started again, but this time I think I know why, or one of the reasons – the damp within my home. Ok, winter can be bad for a healthy person’s lungs, but for those with chronic sarcoidosis – and other conditions that can affect the respiratory system, damp can be dreadful. Stale air can simply take our breath away, suffocating without a bag over my head?
And a decision is being made, because I have a spare room then I get my benefits cut by 14% through the infamous ‘bedroom tax,’ that is a lot from £72.40 per week. I am not a benefits scrounger, my last job was through Leeds Remploy, I know I can and want to work but it has to be appropriate for me. It is being a very bumpy time for me. I have asked Ssafa if they can again help, I never really wanted to ask this fantastic charity but I’m cornered.
In order, this is what is happening. A huge leak from the rainwater drain.
This causes the dripping inside the wall cavity – Chinese torture one might say!?
Then starting in the second bedroom.
And moved into the living room.
All I ask is for my life to be a little level, as my mind is so full I’m struggling to take more.
Last Friday it was my Grandma Briggs’ funeral, and so I just thought I would leave this little message and photo. She was my last surviving grand parent, 97 years old, just a few weeks from her 98th. It is hard to believe she was born in the first world war, went through some pretty bad stuff in the second world war. And then my Grandad was with her until his death in 2003 age 87.
Always loved and forever missed.
So, we know? the Prednisolone isn’t really working, got as low as 7.5mg/day but last week sent it to 10mg/day. One of the reasons you can see. My ankles started the early signs as to what happened four years ago when I started getting ill. The dots grow, then they seem to fuse, the ankles swell hugely and the pain is phenomenal. No known cure for sarcoidosis. For nine out of 10 sufferers it leaves them without treatment, and then they are us few left…
Oh what a game – thank’s to Capital One and the free tickets Jacob won! This capture say’s it all!
At the 2014 Galtres Parkland festival, well it was – IMHO, that ‘The Rook‘ would win the AMP awards grand final, boy it seemed they smashed it! Over at the R and B festival in Colne, well I couldn’t stop thinking that important time of day; the Sunday at 15:00 hrs! Then a little later I felt so very emotional and happy upon Jacob’s phone call. Super impressed guys and so mega chuffed. Not only are the lower steps now climbed, indeed you can knock it very far, jeez…
Well well. Yes it happened, 50 year old on the 27th of July. Yesterday if I had have wrote something it might have been a little different? So I decided to leave it to today…
Two cards, that’s 50% more than I expected!
Thought I would never reach the big five ohhh…
, read the Blues in Britain magazine review or listen to my BCB Radio interview.