You know the old tune; ‘one of these days they gonna walk all over you’ erm, I forget who it were though? mind you, along with my colourful affray of little cotton socks, well they kind of fit with my superb colour schemes…

To be honest I think they look brilliant, its just to carry some of the true senses through surely! there again, on the inside my feet are not healing just like they should, even with the comfy Doc Martens, its a sarcoid thing, but I have the comfiest pads possible, soon to pick up the prescription cream too…

We must remember that exercising sarcoidosis – within reason – is a very good positive, since getting into work again I need to walk about 50 minutes per day, yes its hard on the feet but we getting that sorted, another benefit is that it helps control the prednisolone weight, as does a decent diet!

I guess they must even be hardly noticed while a toe job happened, hmmm, erm, well a job to clean between the toes – yummy!

A few times I woke during the night and felt like something was wrong, I told my main sarcoid consultant and he referred me to the sleep clinic, in years gone by patients had to spend nights in hospital testing for sleep problems, this new piece of kit that I had to wear is called an ARES machine, and yes you must be careful with the spelling! and so I had to spend a few nights in this head gear.

Apparently it test’s for lots of potential problems but certainly its not a dream catcher! I reckon it is better than spending nights in hospital being tested, although the machine does talk to you during the night “You may now adjust the unicorn on your forehead” and it repeats until you do, it says other things but to be honest I can not remember. It has three sensors on the forehead and a nasal cannula which also acts as a sensor. Awaiting results, im sure it will be fine.

Getting employment with sarcoidosis, yes absolutely we can! the journey has been difficult and a long two and a half years, the challenge is huge, after being told I had dropped into the one in 10 of sarcoids my heart fell out with me, but to keep on pushing. I have a huge thanks to give Sue and also Sam, you see sometimes folks can and do help.

Working and having my sarcoid is going to be a massive challenge, im up for it… No stopping this ‘geezer’ im certainly not intending on parking my body and getting all washed up, not a chance, will keep on pushing sarcoid in all directions.

With support we can re-direct the force of nature, much can be washed away but like that there greenery, it can always grow back.

More on this later as its worthy of a longer article.