Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

  • Hospital appointment on Monday the 10th Sept 2012

    It must be mentioned, I weren’t going to do but my Sarcoidosis is confirmed as active, that’s about a dozen or so in the whole Bradford district that have it like me, its not leaving so we are going to have to reduce the Prednisolone and see what happens due to me being on dosages of between 20mg and 40mg per day, this can not carry on, more scans coming up, I already knew really but its still bit of a shock having it confirmed.

    One annoying thing, Atos failed me yet I have something quite serious that is chronic, I have things to ask and sort now as my appeal from 2nd June 2011 is at the higher courts in London, the thoughts are, should I start another claim for Employment and Support Allowance? the ESA offices and or Atos might be reading this, who knows, if so ‘You have got it massively wrong’

    Quite some hail dropping here!!!

  • What a change in looks!

    Somewhat of a tramp type looking here…

    And then we slowly move on to…

    Now we getting there, is it all as it seems?

    But decided on keeping the erm, hair, or what is left! but one day…

    Three chins, woah, scary stuff!

  • Check out this bad parking eh

    And so which is the best way round that there van? some drivers really do park like what they must be, erm, idiots or stronger…

  • Leeds Remploy

    Hey, I have an appointment at Remploy in Leeds, its next week, this could be a brilliant chance to getting back into work, might only be a few hours per week. They do get quite a few vacancies through, the thing is too, employers seem to put trust in disabled people, that word ‘disabled’ jeez I never thought I would be using it, or actually have it.

    And so the story continues, despite all the medics proving I was unfit for work on 2nd June 2011 Atos failed me, the benefits know im genuine and should not have been failed, my ESA appeal is now at the higher courts in London, Im quite sure what the answer will be but this time Atos have hugely got it wrong, I will up date later as I always wanted to get back into work, I just needed the support that was promised and then kicked out!

    Just maybe the Leeds branch have more opportunities for employment?

  • Last drop village

    Me and Dad in 1985, I believe it were either granddads 70th birthday or his 50th wedding anniversary, jeez where all that time goes, keep hold of those close to you; absorb all the heat, feelings, touches and listen…

  • My Dad

    Last week my Dad had a massive heart attack, he died three times but thankfully the NHS brought him back, three times, jeez that has been so scary, im so happy to be able to tell him I love him and that im sorry.

    My big brother wrote this; A great man, A fantastic Dad, A loving Husband, Solid, honest and true, a credit to humanity……THATS MY DAD

  • Folk night at the Swan Addingham

    I forgot to mention, went to the Monday night folk sessions at the Swan, though im not a folk type musician it ended up being quite a good night, played five songs though I really must practice and get the fingers and vocals up to scratch! will attend again. Nice comments too thanks!

  • Jimi Marshall Hendrix

    Something about this photo of the true gent, what would Jimi look and play like now?

  • A shadow within

    A shadow of former self, thats how it sometimes feels.

    Today they have started me on Fluoxetine with a referral back for counselling, we know Pred can play mind games but with some of the memories those games can be made much worse. I often wonder what it would have been like to have a really nice genuine woman to help me when its really tough, I’ll never know.

    The medics at times seem more concerned that I live alone, I avoid local music jam nights as I will probably get known as the village idiot even though im good ‘Stu’s a fucked up bundle of fun’.

    Today my court stuff gets sent to the higher tier, will publish MPs letter later as at least its confirmed he has taken my case on. My fight of getting sorted carries on, getting my bankruptcy discharge was a relief but also a memory of everything I lost, as mentioned before, mainly through no fault of my own.

  • Atos, ESA and the failed system

    I now have an appointment with my MP Kris Hopkins on Fri morning 13th July, we know the law has not been broken so its going to be a huge matter of principle that the ‘system’ seems to not recognise sarcoidosis, I will be writing an in-depth article on my experience of trying to get help from the benefits system while I was at my worse, which we know the system failed me. Thankfully I appear to be improving even quicker – we think? and my search for appropriate employment will deepen.


    All I am after is a system which is fairer to those that can be quite seriously ill but with potential to recover, sarcoidosis is not covered like many other mainstream illnesses, if you put cancer, crohn’s disease, diabetes, and numerous other serious conditions into an illness mixture, what then gets poured out is sarcoidosis, the system fails us big time…

Follow by Email
Facebook
X (Twitter)
WhatsApp
FbMessenger