Just had an amazing Facebook discussion. It started out about this peer woman and her porridge, which transformed into the UK’s welfare which transformed into world aid. I was making a simple point that charity starts at home. Just over four years ago I still believed in spreading the nations wealth much more evenly. Instead the gap has got wider. I just couldn’t get through to this twat that – for me, and pretty much everyone I know, charity starts at home. Just about his parting words before he left the conversation was that I, yes me, have been taken in by the Tory peers, me! What a fucking out of touch cunt he is…
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The Rook ‘Ont Sofa’
This fantastic unplugged performance by The Rook. The ‘Ont Sofa‘ sessions are getting very popular Enjoy this performance…
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What a week of positives!
I will keep this short. Yes, after four long years I have finally been placed into the benefits support group. A good few other things have also happened this week, so it will be good to report more optimistic and positive news. What a long and at times, dreadful these years have been. Sarcoidosis, the meds, mental health, the meds, all mixed together equals a mess…
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My thoughts…
ComicWeekly.co.uk would be a superb alternative view to those real cyclist’s, not the elitism that we find is taking over. Cycling Weekly should now be re-named Sportive Weekly…
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Happy 20th birthday son…
How time does fly, you flew through your teens. You are ace.
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Am I bonkers, you bet I am
Maybe I never recovered from, from when I once returned home from work and found another bloke in my house with a quilt on the floor? Anyway, Try like I might for the past 12 years yet it has been one problem after another, fail after fail, and now the housing association want my home back because of the arrears that the benefits are refusing to pay? More than ever does this song mean absolutely what it states…
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Is Damp bad for Sarcoidosis?
So, after four years of being very lucky to get where I live, due to being ill – Sarcoidosis. It becomes a lot clearer why various areas within this flat appeared to be simply painted over. Numerous times I have contacted Home Group (my housing association) and still nothing. I have now sent the following photos to them, also the links to the videos. Yes some folks are obviously saying I am making a mistake, but if the housing association – Home Group, wont or indeed can’t fix this leak then I must try move on ASAP…
In October 2013 the Sarcoid started to attack me quite a lot, it then never left me. A few weeks ago it more than started again, but this time I think I know why, or one of the reasons – the damp within my home. Ok, winter can be bad for a healthy person’s lungs, but for those with chronic sarcoidosis – and other conditions that can affect the respiratory system, damp can be dreadful. Stale air can simply take our breath away, suffocating without a bag over my head?
And a decision is being made, because I have a spare room then I get my benefits cut by 14% through the infamous ‘bedroom tax,’ that is a lot from £72.40 per week. I am not a benefits scrounger, my last job was through Leeds Remploy, I know I can and want to work but it has to be appropriate for me. It is being a very bumpy time for me. I have asked Ssafa if they can again help, I never really wanted to ask this fantastic charity but I’m cornered.
In order, this is what is happening. A huge leak from the rainwater drain.
This causes the dripping inside the wall cavity – Chinese torture one might say!?
Then starting in the second bedroom.
And moved into the living room.
All I ask is for my life to be a little level, as my mind is so full I’m struggling to take more.
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Grandma Briggs RIP
Last Friday it was my Grandma Briggs’ funeral, and so I just thought I would leave this little message and photo. She was my last surviving grand parent, 97 years old, just a few weeks from her 98th. It is hard to believe she was born in the first world war, went through some pretty bad stuff in the second world war. And then my Grandad was with her until his death in 2003 age 87.
Always loved and forever missed.
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Sarcoid ankles
So, we know? the Prednisolone isn’t really working, got as low as 7.5mg/day but last week sent it to 10mg/day. One of the reasons you can see. My ankles started the early signs as to what happened four years ago when I started getting ill. The dots grow, then they seem to fuse, the ankles swell hugely and the pain is phenomenal. No known cure for sarcoidosis. For nine out of 10 sufferers it leaves them without treatment, and then they are us few left…
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Thoughts, positive ones at that!
Yesterday was the 27th October 2014. Erm, any-ways, I had a huge raging rant on that media called Facebook. I have taken 500= friends to 100, I just can not see the point in having FB friends who just don’t do any? communication. So, will those unfriended that me, myself, and I, decided to remove, will they notice? Either way, it has triggered me to get on with the real world in me on here. I’d love to be a posh hippy – but I’m not.
