Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

  • Right, finally trying to sort my Beep referral.

    Bradford Encouraging Exercise in People (Beep), is possibly a direction that could be good for me? Lets see…

    Beep

  • To debate, acknowledge, or not to, that is the question?

    I posted this to a Facebook friend, he tirelessly raises superb debates…

    “I admire many of your recent post’s ****, you are saying what a massive % of folks are thinking. It was asked on here (your page) If I was a supporter of a chap called Don Trump, after absolute minimal research, Don Trump is simply a version of Nigel Farage, and is saying what many dare not say. You ****, like me, do say as we feel, right, wrong, loads of in-betweens, but we can debate, we can acknowledge others views, where as a very few who answer you can’t = facists. Your a brave man and I admire you.”

    Oh, facists as they only have their own views, and no way will they acknowledge others.

    Anyone find a problem with this photo?
    sonicsales
    All the men have a brolly, and the women huddle like penguins…

  • Head of Steam, Leeds!

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    I reckon those bottles take some dusting!

  • Testing testing 321…

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    Yeay, my first posting from a phone!

  • Blogging on the Move…

    Well, my three year old hTC Salsa finally gave up its dance. So, ended up getting a Bush Spira A1, with ideas to blog on the move, not just to tweet, but do it direct to my site. I guess it really is easy, but my layman’s terms of technology can fail me – big time!

    Eyes out!

  • In’t milk brilliant?

    Mushrooms and onions do it.
    Mind, should that be over something?
    Best get on with it quick.
    Oh, but its too full is the sink.

    Kettle boiled can undo the shit.
    Though many times to release the hole.
    Only raises fat to the top.
    Pans and pots fuck it.

    In’t cheese brilliant…

    Happy another year.

  • Sarcoidosis and Zero Vitamin D

    I just don’t post enough, though I do tweet and hope folks get to see some? At the beginning of November 2015, I started a typical cycle of being shattered, fatigued, tiredness, exhausted etc. Went to the docs, mainly because I had hit quite a low mood (more on that later). He has been pretty good with me, anyway he suggested some extra bloods testing. Amazingly within a few hours the results were back, I have zero vitamin D in my body.

    So, I’m prescribed Invita D3. Two be taken once per week…
    D3

     

    I did my usual and researched this drug, guess what, it carries a warning that patients with Sarcoidosis must be treated with caution, the warning is pretty much that this medication can be dangerous for us sarcoids. So, zero vitamin D in sarcoids is dangerous, as are the meds to treat zero vitamin D in sarcoids, jeez.
    Sarcoid and D3

     

    After phoning Addingham surgery, the doctor returned my call, he went through his BMA manual and found the advice in some small print, he thanked me and we are going to try with half the dosage.

    More growths are happening inside my feet, especially the ball of the right foot. It can feel like I’m constantly walking on pebbles, so I’m awaiting various scans for this.

    I have never felt so tired, and fed up. The mental health team have got me in really quick; it took only two week. I know it can take some folks months. I’m going to be treated with Cognitive behavioral therapy (be careful how you key the CBT into the search engine – ouch!) which we hope will work along side a current medication of Fluoxetine. When I did see the doctors screen it appeared to have a red background, that is a first time.

    Sometimes this would be the best way…

    It’s shit, I swear.

  • Happy 21st birthday son

    Well, one thing is for sure and that is; time never stops, feels like it gets faster, and faster, and faster…
    21st

  • A nice erm, foot?

    Its like, how much am I supposed to suffer before many, a very many folks believe me? I’m going to keep this simple with very minimal writing, photos should tell a little. Sarcoidosis mimics, masks, & mutates any other condition, known, and unknown. The following three photos are of my left foot. Oh, its only physical pain, that I can take, as for the mental trauma, that I struggle with.
    Fuck feet one
    Fuck feet two
    Fuck feet three
    This shit is real. I never ever expected to get stupidly ill at 45 years of age. Tried work through the brilliant Remploy, my body packed in. The UK’s welfare finally accepted what ‘all’ the medics were stating, and even backdated this.
    Sarcoidosis is a cousin of cancer, but the names are very different and can grow anywhere upon within me without any form of warning. For the non believers, I’ve had enough of you, so fuck right off…

  • Fucked up feet.

    My feet are fucked, more later, but: Today, 30th October 2015, I collected my two pair of spectacles. Now, proper odd, as once I arrived in Leeds, my sense of direction went really weird. Eventually I found the Boots opticians entrance, then walked into the entrance to the left! What a fucking knob, so panicking I got sweaty, rushed out and turned to the mediate left: Boots…
    My turn
    These are they. The pair at the top are my reading ones, they are too tight. Boots knew this but I had to leave asap. I will return for them adjusting, but thinking if I learn better, then my medics advice to use sunglasses at all times can be in-cooperated?

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