Category Archives: Blog

Hmmm, new meds

So, whats with these new meds, how do I take them? as an insult or helpful! Brufen Retard it is then.
Brufen
Started on Friday evening, just one tablet for a week and see where we are, then if need be and in the second week up dosage to two, if no improvement after that it could be back to the dry marker board. One thing is for sure, I really can not take anymore time off work, lost over a months wage so far, yet since Saturday I have been burning up and off, we will we get there.

The heating might need to go on

Arrggghhhh! decision time, my living room heaters might need to go on? only for the weekend, then during the week I could get home from work and jump into bed, another good way to help keep the heating bills down, erm…

During the week I had a reminder

Let me cut some shit out. A good few years ago I drank myself through about £10k, my closest pals know as do some of my family, they were well upset – as you can imagine. I certainly know what its like to be ‘boozing’ too much. That there deepest of holes takes some getting out of, some of us? do, it takes time, ‘guts’ and patience. This is the article I wrote, all facts, and the below video is all about those times, though wrote and recorded a few years later. Listen to the full song, I’m still a hearing it!!!


Did you hear how empty my flat sounds?! Thankfully I got rid of that memory full guitar. Weight loss through sarcoidosis. I dropped to 8 stone and then put on weight through the good, bad and ugly Pred. It is not a lengthy blog as I see no point in trying to say what I know and for many others to guess and carry on guessing… Save on utilities here.

Nearly threw in the towel

The title say’s it all, last evening and then night I almost thought about, but today has been positive, especially through Remploy and work. The main thing is; I now fully understand I can not carry out jobs like I used to, the mind say’s yes but the body is reality. Work and Mark at Remloy have been brilliant and understanding. Here’s to the upcoming winter without Pred, working and being a one in ten sarcoid – give it to me!

How to make a healthy sandwich made really cheap and easy

We know the score? Can not be bothered making a cheap yet decent healthy sandwich early Monday morning, its been a long lazy weekend, too many takeaways and booze – yet? ah ha, but some of us do – now and again, make a healthy sarny?! But when we don’t, we end up with a Marks & Spencer, or Boots, or Subway, or another ‘outlet’ expensive sandwich, but boy do they cost too much? So here we have a really cheap way of putting together a healthy yet cheap sandwich. Ingredients purchased can cover these sandwiches for about three days, for me the lettice type leafs can be soggy, really soggy, oh… Proper ingredients; turkey slices, red onion, crunchy mixed salad and cucumber, mixed bread caked with tons of butter.

Sandwich 1
Ok and here we missed me chopping up the ingredients, and as can be seen, placed on the turkey slices are the red onions, perfectly cut too thick – brilliant for that hangover, mixed crunchy salad, cucumber and a good squirt of, erm, its so hard to spell, not going to spell check and so, erm, mayonarse.

Sandwich 2
As can be seen the sandwich box appears too small, but believe me its a good size, I think the healthy sandwiches are filled too much, it can be done, four really can fit into one, that there plastic box.

Sandwich 3
Just look at that, perfect, took a little sitting on, you know, like when we have clothes that need to fit in the suitecase? that sounds like sweetcase? yes I mean suitcase now get off my back…!

Sandwich 4
It has not been mentioned but, I was asked how I perform this marvel, really! Sunday night, put them in the fridge, with the freezer thingy’s in the freezer, and next moaning (it’s Monday don’t forget!?) put the sandwich box on top of the frozen blue thing, make sure the sandwiches are still in the box, as when intoxicated they get eaten during the night – unsure by who?

Sandwich 5
Just look at how proper fresh they still are at 13:30 hrs, oh, its on the train home. For you guys the hangover will be so strong you will make an excuse to leave work early (not me silly, erm), yet those super healthy refreshing sandwiches do the trick – but the ticket lady caught me with my mouth full, I almost sprayed her with some crunched salad and mayonarse, yet thankfully it weren’t a cream pie…

Thats five week off the Pred

Well – I start too many post’s with that so; Five week off the Prednisolone, on some other meds but how odd it can make me feel, the hands stop moving during the night, knitting needles push into the rear of my eyes, skin looks and feels weird, other stuff but my ankles and knees are a nightmare.

Thinking about full on thermal underwear for the upcoming challenging winter, my first winter off the Pred and in work. Big big challenge that I will win, head says one thing the body tries to sway the other way…

A good strange time

Well, so far this week things have been sort of steady, a good meeting at work on Monday with Remploy, my team leader, and department manager. I just needed to clear everything that had built up, including apologising about various things from myself. As for the sarcoid, hmmm, it is my first approaching winter without being on the bad good Pred, I can already feel stuff happening, keep those fingers cracked across…

Discrimination or not, that is the question

Here is some truth through my passion of freedom of speech; freedom of speech, empty promises, over qualified, might get bored, and earmarked vacancies, but could it be discrimination? Jeez, this past year I feel that I have experienced them all, especially at work. Very grateful to Leeds Remploy for getting me into work at Enterprise, and very grateful to them too. But then, some facts.

I was promised so much upon achieving that position, and so, that story begins… One thing is for sure, my sarcoidosis is certainly playing up due to some recent events, including the redundancy situation and my want of trying to progress. Read on…

Redundancy

 

 

 

 

This was at the beginning of August, though told not to worry its human nature to worry.

Dot ankles

First thing that happened was my Ankle dots, this is a first sign that the sarcoid is becoming more active.

Bloodshot eye
This is certainly an activity that sarcoids know only too well, it can quite easily develop into Bilateral Uveitis. On Friday 27th Sept both of my eyes started.

Simply put I just could not understand why I failed at three interviews I should have walked into, other positions came up without being advertised that I was more than capable and qualified to do. This week I recieved a letter saying that my new position is gas restoration administrator, that is a high stress job, the most stressful in in the office that no one likes doing, especially on £6:60/hour, although I have the current tax credits but only till March 2014. If any working position a one in ten sarcoid needs to avoid its a stressful one. No wonder my body has gone and started reacting again, jeez.

When I was at the initial interview I was told plenty of opportunities would be available for me to progress. At home I got a few phone calls from the manager who mentioned ‘off the record’ I would be able to progress pretty quickly with the qualifications and experience I have; qualified plumber, trained in the 5Cs by the SMMT, HNC Technology and Management through Leeds Metropolitan University, and been a manufacturing manager. I had two other jobs on offer through Leeds Remploy, also someone else from my current place of employment at Pottery Fields House in Leeds phoned to offer a position, but I had given my word to the manager of my future team.

Lets cut quite abit out, I asked abit about progression, I was asked by another manager to take my 5C improvements documents and information with me, so I did, and after two weeks of no one showing interest I took them home, that was my first thought that I had made some kind of mistake, but glad to be working, proving to some degree that one in ten sarcoids can work, but I felt my chances of progression were much less than first mentioned.

Lets cut quite abit more out, in June I got a chest infection and ended up on anti-pneumonia tablets, chest infections can unsually kill sarcoids, especially the mentioned one in tens, that I have officially been told I am, proper scary times that. Before being that ill I did not tell work how unwell I felt until later, my lesson learnt to be upfront fully about sarcoidosis. I had a staged return in July with yet some further promises of progression, by the end of July the medics said that they believed I had gone into remision – fantastic!

At that point I thought I may as well start applying for other positions, and at the seem time my team got the redundancy notice, shit, bad timing for me as I need the sarcoid to stay none active. Three interviews later and those other jobs not advertised yet taken, phew, the reasons are absolutely garbage why I am not getting the jobs, the funniest of ‘your 5Cs knowledge and answer were not good enough’ eh! I’m trained by the SMMT – look them up! I even have my plumbing with the gas and pressure systems units. Before the interviews for one of the positions, I was told who would be getting it, then, I overheard two folks chatting about that job, but they must still get the C.V. in, yes that person got the job. I have started to be at a loss why I have not been getting jobs that I am certainly much more capable of than others! 27th September it finally hit me, from my previous experience we know a company is not supposed to discriminate but yes they do, it is not a nice feeling.

In May Enterprise were taken over by Amey, at Pottery Fields House Amey work for Northern Gas Networks, I so thought my experience and knowledge of the 5Cs and construction should have stood me in a great manner of progression, and now the current position that I feel cornered into is causing the sarcoid to raise its ugley head again. Yes my freedom of speech, nothing and no one harmed here apart from my own facts and me. All I wanted was a chance to progress and help the company succeed. Other stuff happened, I am also very glad of being given the chance to work, but we are laerning just what causes the sarcoid to become lively. Now I will stop right here.

Stu.

This crap about the public sector and strikes

I did work in the public sector, only for a few years but, they are on great packages, I know folks who retired at 53! I know a fireman who went part time in his mid 40’s with no complaints. I know of teachers who said they teach because its ‘fucking’ easy – iv witnesses, oh but then they turn and say ‘its ever so hard’ when they want support. Unless your from a reasonably wealthy ‘not labour rich’ background then the public sector have a far better package than the private sector, its just that not many like to say so, but ffs its true…

Photo upload problems

Folks, I have a good few photos and stories to upload, but, for some reason photos will not upload? Though today’s appointment went well with the doctor, for once no more drugs required! I have been off prednisolone for one month now, the body has been all over but we think its going ok? Still got to carry on with the Alendronic Acid for at least one year just to help build my bones up again, then we will scan them, still other drugs but im off the Pred!