Living with sarcoidosis, the good, the bad, and lots of in between.
Wednesday is a doc’s appointment. Just need to run through some stuff. Been on 100mg/day azathioprine for almost two months while we dropped the prednisolone from 20 to 15mg/day start of April. Body can seem to go up and down, peaks and troughs, same with the mind, but the fluoxetine is trying to control that? Chest pains can happen at night and certainly the lower back (kidneys?) can give me some shit…
Just a little article about Tuesday 8th April 2014.
Venue is Bradford’s St Georges Hall.
Event is the AMP Awards competition for the district.
The Rook performed three songs, absolutely brilliant and this is the order of playing;
And the winners were…
The Rook!
Which means they are at the grand final in the August bank holiday weekend of Galtres Parklands Festival, Duncombe Park, Helmsley.
This will be a fantastic weekend. Keep your eyes and ears well opened for one of the best bands to be arriving out of Yorkshire since, hmmm, in my opinion, well before the Artic Monkeys!
One thing is for sure, since doubling the dosage, my body seems to be screaming at me to stop taking the azathioprine. But, end of this March of 2014 I will be dropping the prednisolone from 20mg/day to 15/day, that’s a mighty 25% drop! The medics have said its quite important that we keep on top of the bloods and that I stay aware of what my body is telling me. Its telling me I feel a little fucked…
Is that orb something to do with the moon?
I’m lost for words. Share with all and all to share, this is simply beautiful, this is superb Jazz, this is Blues, Rock, and mainly Brotherly…
Have a great birthday mum. Love you and dad tons, and thanks for being brilliant.
After 10 months my Areca Palm has started to turn very dark green. Still has some nice silver green shoots but none are growing through. Is it ready for the spring and summer growing season? have I over watered it in the cold season? I have been advised to let the self watering pots completely empty and leave for a week or so? Here is how I am going to try and save this Areca Palm.
It is difficult to notice but the right side shoots can be seen to be very dark.
This food might help, I pushed three into the pot, erm, it might – hopefully, get massive with nice silver green shoots!?
Thing is, very tiny ‘gnats’ were hovering above the compost. These traps are suppose to catch them?
So, in a nutshell it’s going to be a waiting game with fingers crossed and lots of talking to my Areca Palm…
Ok and tend to lapse sometimes? but erm, anyway. Just an update on the sarcoidosis side of things. Photos say it all…
Yes the Prednisolone seems to have failed, even as high as 40mg/day. My body can not sustain that amount of chemical punishment. So, and as mentioned before, we are trying some Azathioprine, low dosage at 50mg/day, the idea is to drop the Pred and increase the Aza.
Airedale hospital have been great, as per that photo they are bringing appointments forward. I have plenty to ask but the idea of organ rejection drugs makes sense, my body rejects my healthy organs, so lets try?
Prefer to be better.
I was going to try keep this really as short as possible due to it being a post rather than page, but. Anyway, smoked bacon and cheese toasted sandwich made super simple with outstanding taste! Do read on, well, you better had or…
No need for an earlier photo, simply lay the smoked bacon on the bread, and double up those cheese slices.
Oh, usually we only ‘lube’ the outside of the bread, but this time I decided to butter both side’s, hmmm.
It ended up being so full the force required was hard work, especially after the use my left hand had been through that very day!
With my enhanced bass strength left hand it was quite easy, you were all thinking something else!? I’m right handed. And so I went to sit down on my backside shaped bed settee, well, the bed is tucked under and safe. Look, here is what I mean.
Its really comfy, changed it around last week, loving the colours, just need a few more cushions, grapes and someone to feed me, prefer a lady but, I then heard lots of bubbling, that weren’t my insides! Damn what is that?
I fell upwards off my settee and through the steam and horrendous sounds of cheese in agony I noticed an orange come yellow substance pouring out of my toasted sandwich machine. It brought memories of ‘The Blob.’
It still had not stopped cooking, what do I do, erm, sod it…
Yes let the fucker finish cooking, gorgeous smells – bring on scratch and sniff phones. Oh, its hot, so was/is perfect body Marilyn Monroe ‘Happy birthday to you, happy birthday to you, happy birthday Mr president’ I mean come on – did they? Oh, cooking. Chuck the sandwich onto a half wiped plate. Keep some bugs, they are good for us. Where am I, damn…
After putting a little mayonnaise on the ‘dish’ and a towel folded over your arm, make your way back to that settee.
Using a little mayonnaise slop it onto the bacon and cheese toasted sandwich, force that huge fork full into your mouth, savour it, hold on, savour it, chew a little more and send it down the hatch, brrrr…
As tempting as it looks, smells, and seems, erm, and tastes, do not lick the kitchen top, clean it when its gone hard. Can you see the smile???
Nothing really needs to be mentioned about this, the photo say’s it all? especially those tins with sausages!
Oh, they are also stacked at the rear…!
It has been asked many times how I do so well in keeping my bills down? First of all, I joined The utility Warehouse and then actually joined the Utility Warehouse ‘family’ erm, though I have not managed to get anyone to join, yet. OK, maybe I might not be a salesman, but I know how to keep my bills low! Please follow this step by step guide on one of the ways to help keep your bills low – er! Check those banners on the erm, left!
First of all, you need to make sure enough pretty naughty, er, dirty stuff has built up. In this case I had plenty of room on the kitchen top’s but ran out of plates, pans, pots, and the rest, otherwise…
I didn’t show the sink hole filling up, that could have been dangerous.
I start with glass, then the sharp hunting equipment, followed by cups, small pottery, leading to bigger pottery with hard on shapes positioned on top.
So, it really doesn’t mean shove everything where they might balance, its actually important to make sure everything can really fit into one. Where possible, and nice and easy, get it all up on top.
As you slowly start to withdraw in the correct order, do take much care not to pull off anything underneath? Erm, what do you mean this looks like the building up to it photo, huh…
As with most ‘clean’ folks, do ensure everything has been cleaned and wiped afterwards, this is essential due to potential spreading of, erm, still thinking.
Erm yes, sink hole problems. Thank you for your time in viewing this very important arsticle.
