Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Author: Stuart

  • Boredom big time.

    Back at Hospital on Wed morning with my eyes and then on Fri its an Endoscopic Ultrasound for my chest.  I am so completly fed up and bored-Need treatment ASAP and then get on my bike not to allow the steroids getting me FAT!!!  Fatigue is another thing though-I have never known tiredness like it.

    I try get pics and videos loaded, I have also got a sketch pad and pencils to try start drawing, also the short stories to get on with, but how I would love a guitar or 3, perfect for the boredom-though concentration is also abit difficult…

    Sick pay is now SSP and not too brill to say the least, when treatment starts I hope keeping healthy and fit on my bike will enhance my recovery-It will work out fine.

  • Nearly there.

    It now appears that I have Sarcoidosis and BiLateral Uveitis…  Need more tests but very close-Prefer Sjogrens syndrome!!!

  • Getting closer now.

    Went to see chest specialist, they very close tp finding out what I have got.  The X-ray shows a shadow on my chest, the CT scan has confirmed 2 ‘things’ are abnormal in my chest.

    Next now is an Endoscopic Ultrasound in my chest-this will confirm what he thinks it is-and it is treatable.  All confirmed in the next few days.

  • My eyes now…

    I have zoomed right into the screen but I can not fully make out the keys.  I have now lost some of my eyesite, I have 3 types of medications to take for a month.

    The left side of my Colon was checked earlier this week, it looks ok but they do want to do a full check under sedation on the 22nd Sept, problem is-I cant read all the information on how I am to prepare  the 2days leading upto it…

    Its Fri and I have appointment for my 2 Abnormal ‘somethings’ in my chest.  I am pretty sure everything is linked it will all work out OK.

    Dont worry my Matt and Jacob.

    Stu.

  • Wonderwall, Volume 11…

    More band members singing eh!!!  Good version, maybe I should do a full tab on this up and calling band.

  • My Jacob’s band.

    I think this young lot have got something on the go here!!!

  • Havent’t a clue.

    I got CT Scan results back, went to Hospital and it appears I have 2 ‘Things’ on my Lungs-they couldn’t give me any more info apart from, as well as possible Sjogrens I might have another 3 illnesses, FAB stuff eh…  Urgently awaiting Lung specialists now;

    A body draining of moisture.
    Tears, though try they dont arrive.
    Sure it will work out ok?
    But squint to see it through dried eyes.

    I think I should carry my sketch book.
    Only 2 and half pints, Strolled on home.
    My hat is firmly off.
    To all those folks through hard times alone.

    I have never felt so Fed up, Alone and Lonely-I feel dreadfull all round.

  • Haven’t a clue.

    Mumps so I thought, as did the Docs and folks.  Tons of tests and X-ray, and then it was-maybe it still is-Sjogrens Syndrome.  Now called in for an upper body CT scan with Contrast, I have never been so scared in my life-or have I?  Mumps so I hope…

  • Something in the way…

    Many times I go to sleep with open eyes.
    Looking to the future back at all those whys.
    My eyes close but ears they are open.
    Jump and jerk, its not a trip-I have woken.

    Many times I go to bed with closed ears.
    Hoping not to see, but hear all those fears.
    Tears they dry, keeping both eyes sore.
    Enough is enough and to want it is no more.

    You can hear it but you cant see it.
    Trees bend when the wind blows.
    You talk to yourself into the wind.
    You talk to yourself and no one knows…

    Alone, but lonely intense Hugs of mine…
    Love my Matt and Jacob big time.

  • Seven Nation Army, Briggs lot!!!

    Great vid…

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