Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Author: Stuart

  • Hats, socks and scarves, colours we love

    Colours bring a smile to so many folks, nothing wrong with singular dull colours but I just love getting the crazy and daft colours to show personality is within.


    By far the biggest hat I have ever had the pleasure in wearing, when walking around for some reason I do see folks smiling at me, I just can not understand it!


    Absolutely the brightest hat I have ever worn, terrific, I will get more over time, these two are LOUDelephant, you should check them out, fantastically warm too, possibly the best natural wool hats available are LOUDelephant, 50 pence per hat also goes to charity.


    A few more socks here, all are about 85% cotton, this seems to help with my feet, synthetics can sometimes seem to be a problem, hence all the new clothes especially for work, mind you, some of the smiles I get could be down to my socks!

  • Name that tune

    Could someone please put me out of my thoughts of that I will never find out, today at the doctors, and for the third time running, this tune came on, none of the receptionists know what it is, they even said after my last visit the doctor came out to ask as I also asked him!!!

    What is this tune

    Its a little rough as it is recorded on my Orange Rio, but the best times to turn it up are between 30 – 41 seconds, someone must know the tune!? I really do need a better phone now! Please someone put this misery to the opposite and make my day! I went to the doctors as unfortunately this morning I still did not feel too good after the Alendronic acid yesterday, it wont happen again and they prescribed me some stuff to help settle my stomach during the day.


    We are to marshall my tummy! I really am doing everything and anything possible to ensure I can work well.

  • Alendronic acid

    The worse meds for me seem to be the alendronic acid tablets, I used to take them on a Wednesday but since starting work I changed them to Saturdays, simply because, after I have taken them I can feel pretty rough for too long, thankfully they are just one per week, for those who do not know they are taken first thing with about 500ml of water, and then I must remain upright for a least half an hour, problem being, I forgot on Saturday morning so took it this morning, yes felt quite rough and bed soon, its early but that is certainly not a problem, this sarcoid rests as much as possible.


    A little while ago I contacted my consultant about something that was beginning to get too embarrassing, as you can see he reviewed my latest scan, thankfully its not the sarcoid, they reckon the prednisolone can cause gastric problems, but I feel its more to do with the alendronic acid.

    Last week I had bacon butties on four mornings, after each time I got some stomach pains, but the morning I had no bacon butty I felt ok, conclusion, I have decided to try something different in the mornings, as I can now sort of afford to do, but it might not be as tasty!


    I am terrible with cereal in a morning, in fact any form of early morning breakfast, I aim on taking two breakfast bars with me and probably eat them on the train, its claimed a couple of these cereal breakfast bars in the morning can be really good for you, I will try, even after the bacon butty I felt sweats coming on, so it might be weekend only now!


    I’m also going to have one of these Actimel drinks each morning, the overall target is to settle my insides for the working day ahead.

    So I need to get appropriate treatment to counter a drug that counters another drug… Proper glad of works disabled toilet, its quiet and I certainly do not feel that embarrassing thought of someone listening to a hideous fart and ‘stuff’ ha…

  • Socks, hats and scarves, we love colours

    For now I guess it is to keep this brief, but then what is that, these vary, though not briefs – thongs, or, hmmm, breath deeply…?


    These really do appear my favourite, but then we pull others over our feet and…

    What are your best thoughts for lots of colour on the feet? go get them, loving it, and I think folks like us can do the trick!

  • New additions to my moving on times

    I still can not believe my luck, after so many negatives over many years, well, given a chance then a chance gets grasped, squeezed and taken, all part of getting on, the following weekends erm, surprises, well not really but I surprised myself!


    I got this for half price, best electric shaver I have ever had, it can be used wet or dry, and so a great video in the rain on Ilkley moor arrives at my thoughts!


    The most comfy of footwear, today these Doc Marten dealers got worn in big time, I had a forced run to the bus stop, quite impressed actually as my lungs did not know what had hit them in such a while, oh, they also go with my shrunk jeans!


    By far its possibly the best coat I have ever owned, a Bellfield parka, mixing it between a furry mod parka and an M65 military jacket, though I love my Czech jacket, but it looks too new…

  • Baildon live at the lounge jam night

    What a great night we had, myself, my eldest son Jacob and his bands drummer Sam, three songs played in the form of; Dust my broom, Johnny be goode, and Alright now, though I guess my lack of understanding on that thee five string bass threw me somewhat! a lower ‘B’ string, jeez I kept wanting to play it as the ‘E’ string! great laughs, good fun and a joy to play with those guys – Sam’s first time!

  • Jeans for straight men!

    I noticed this advertisement on the internet the other day, found it quite amusing, I guess gay men are not allowed to purchase them?!


    And so I did not order them, oh, but I am straight, for now ha!

  • Those feet are made for walking

    You know the old tune; ‘one of these days they gonna walk all over you’ erm, I forget who it were though? mind you, along with my colourful affray of little cotton socks, well they kind of fit with my superb colour schemes…


    To be honest I think they look brilliant, its just to carry some of the true senses through surely! there again, on the inside my feet are not healing just like they should, even with the comfy Doc Martens, its a sarcoid thing, but I have the comfiest pads possible, soon to pick up the prescription cream too…


    We must remember that exercising sarcoidosis – within reason – is a very good positive, since getting into work again I need to walk about 50 minutes per day, yes its hard on the feet but we getting that sorted, another benefit is that it helps control the prednisolone weight, as does a decent diet!

    I guess they must even be hardly noticed while a toe job happened, hmmm, erm, well a job to clean between the toes – yummy!

  • Testing for sleep apnea

    A few times I woke during the night and felt like something was wrong, I told my main sarcoid consultant and he referred me to the sleep clinic, in years gone by patients had to spend nights in hospital testing for sleep problems, this new piece of kit that I had to wear is called an ARES machine, and yes you must be careful with the spelling! and so I had to spend a few nights in this head gear.


    Apparently it test’s for lots of potential problems but certainly its not a dream catcher! I reckon it is better than spending nights in hospital being tested, although the machine does talk to you during the night “You may now adjust the unicorn on your forehead” and it repeats until you do, it says other things but to be honest I can not remember. It has three sensors on the forehead and a nasal cannula which also acts as a sensor. Awaiting results, im sure it will be fine.

  • Eyes to be scanned and sores on my feet

    My eyes are for scanning today, should be ok, though I am going to ask about reactor lenses, its just that the sandpaper feeling of eyelids – especially in sunlight – needs to be sorted, they can also get sore in the office, so its just more advice on how best to work around these issues, then I have the docs this pm, iv started with sores on the ball of my right foot, and a little on my left, very painful, they should have gone by now, I do wear Doc Martens as much as possible, they are superbly comfortable and so I just need some meds for my feet.

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