The past few days have been extremely hot, they say hottest in 20 years in parts of the UK. It’s the hottest I’ve experienced since being diagnosed with sarcoidosis back in 2010. Yes the heat is terrible, what can I do? nothing, but in the cold I can wrap up, turn the heating on full etc. The heat is dreadfully killing me. I have increased the prednisolone by 1mg/day to 5 which is about a 20% increase. I have asked to chat with the doctor.
Truth is, they don’t know what to do, I have no cure and more than likely they will want to increase my Pred by alot more, as my bones slowly disintegrate.
I’ve cancelled the following appointment as I cant face having a lot of teeth ripped out.
Mashed up head.
