Stuart Briggs

Living with sarcoidosis, the good, the bad, and lots of in between.

Letting folks down

Tonight I let some pals down, they have been great over the years and I were looking forward to ‘mad Friday’ for the start of most folks Christmas break, I just struggle to explain. In April this 2012 my sarcoid attacked me big time, worse than the diagnosis of those early times, and so I pushed myself and we reckon its under control, great, get with Remploy Leeds and achieve a job that I proper like, I will keep this short, I am a one in ten, no silly not the UB40.

I appear to be doing what most of the rarest sarcoids unfortunately struggle to do, I have been given a chance to work, and somewhere that I enjoy, folks are great, humour is mad and, erm, yes they do blush me sometimes, but that is definitely a fair game?

Where were we? ah, I really am rare and pushing the limits, I need rest after a good weeks work, my head did say up until Thursday morning that perhaps I can do mad Friday, I learnt a lesson at the works ‘do’ in that I need to pretty much have minimal movement after a days work, oh it really is so difficult to explain, I really am enjoying work but my body packs in if I don’t rest enough.

Comments

2 responses to “Letting folks down”

  1. That is explained superbly, I really am good at explaining ‘stuff’ but this time its been explained better than I could have, I don’t lie, but I felt a lot was not understood, a point being, it is not my friends fault’s but I do try hard to explain.

  2. Andrea M.

    To anyone who doubts Stu, he knows of what he speaks. I have this thing too and there is a limited amount of energy that can be expended before fatigue and symptoms show up. Therefore we have to choose wisely how to spend them. Doesn’t mean we can’t have fun but we can’t go all out batshit crazy either or else we pay dearly for it.
    This illness can’t be seen on the outside by others, so they forget we have this. But it is very real. We don’t ask for much. Just compassion and understanding and respect.

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